Liam's school play

Letting the cows out May 2011

Max and Hilda and the cousins

Baby

New pictures

New bicycle

Finally! The new bike is here!
When we were at the camp last summer, Liam tried a wheelchair bicycle... don't know if you remember the pictures?!
As soon as we got home, I talked to the company that sells these and started applying for money from different foundations. The bike costs about 11 000 dollars, but short of 90 dollars (!) I managed to get the whole sum from three different foundations!!!
Today he took the first ride in his very own wheelchair bike!!! Can you imagine the freedom???
I will post pictures later!

chromosome 16

The doctor called. They finally got the results of the micro array tests on Max's chromosomes.
He has a micro deletion on chromosome 16. That is what is causing his late development. There are not many known cases but the ones there are all speak of mental retardation. That is what I've felt, all along.
It feels good to know what it is, to have a name... to me nothing else matters; he is still the same wonderful little Max. And I am not going to worry about tomorrow!
Robert was a bit upset; he was still hoping Max would catch up, even though, we did get the answer that would not happen, several months ago! He is coming around, though!
He is mostly worried what this will mean for Max in school etc. Afraid he will be teased and so on!

The doctor said this is just bad luck, neither Robert nor I have anything similar. I will not call it bad luck! I just can not say Max and bad luck in the same sentence:-)! To me he is nothing but perfect, as is Liam!!!
But I will admit, it is strange that both our children have difficulties that are not related!
I will write more later... Liam is not well, probably an ulcer, so he is in a lot of pain! Going to the doctor tomorrow!
Love you all!!!
https://www.facebook.com/video/?id=668848522
Dad and sis should be able to see these videos!!!

Don't know how to say this:-(

Max and I saw the doctor on Monday...we still haven't got any answers on his late development, except that they have found something on a cromosome. They don't know, however, if that is the reason. Robert and I have left blood for analysis to see if we have it too.
He is now, at 18 months, at a 10-11 month old development level. And a lot of things have happened since he started crawling!!!
That was not the sad news!
No, the sad news is that the doctor strongly discouraged me to travel to the U.S with a five week old baby in June.
Of course, I should have thought of this myself... I was just busy trying to figure out HOW to do it! Thinking about it, I realize that it is taking a lot of risks with that baby, especially considering infections on the air plane and the fact that a baby does need peace and quiet. Not to mention I will have a ceasarian cut that will just be starting to be ok!
He said to really think about waiting until the baby is at least 5-6 months!

I should have thought about this from the beginning, when I first found out I was pregnant...

We will have to find another time for us to come... maybe x-mas? It breaks my heart, I was sooo looking forward to go, but I realize the doctor is right!!!

Love you and miss you!!!!